Engaging people in cancer research funding

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What is patient engagement in research funding?

The Canadian Cancer Society (CCS) aims to fund high impact research that is relevant to people affected by cancer and improves cancer outcomes. By engaging patients, survivors, thrivers, caregivers, and families, we can make sure people affected by cancer shape the way that research is conducted and how funding decisions are made. 
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Being a patient partner – what you can expect

Even though our patient partner activities are all based around research funding, you do not need any previous experience with or exposure to research to participate in most of our activities. We will support you to partner meaningfully with us. We encourage diverse perspectives and people from all walks of life who are affected by cancer to get involved. Here’s a sample of how you can be involved as a patient partner, what you can expect, and how to become a patient partner.

Partner with us

Here are some of the ways that you can partner with us in cancer research funding. All opportunities are virtual at this time.

Review research proposals

If you have been affected by cancer and would like to provide your perspective in the review of research funding applications, join the Patient/Survivor/Caregiver (PSC) Reviewer program.

Find a clinical trial

CCS funds a range of clinical trials across Canada. These are some of the clinical trials that are actively recruiting participants right now.

Check out other opportunities

If you would like to help in other ways such as by sharing your experience, co-developing new research funding competitions, or supporting researchers in the design of their projects, reach out to learn more.

Get involved

We want to hear from you! If you would like to become a patient partner in cancer research funding, click here.

What it's like being a patient partner

Some of our patient partners share their experience with cancer research funding.
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Involving patients in the review process brings a perspective that many researchers are not familiar with. The sense of participating in an important program was rewarding. I found the experience invaluable. In many ways it reignited my interest in the science of cancer. I was able to better understand the challenges facing research funding agencies. Thanks.

— Angus

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I am glad the patient voice is part of the review process. I thought each of us added depth and breadth to the discussion based on our lived experience and our personal focus. I think in many cases, applications seen from a non-technical, 'public' perspective added a fresh vision to the debates. Thank you to the patient engagement staff for being so supportive, patient and kind.

— Kathy

Image of Patient Partner Lori

[When co-developing the CCS Health Equity Research Grants] I provided three pages of comments, with the first page focusing on the language I didn't like in the proposal as it seemed exclusionary and overly clinical. The heading I used in my comments was "Certain words in grants tend to get my back up".  Judit (CCS Senior manager, research partnerships and engagement) called me to go through every comment I made – and I made so many comments! – and as she asked questions I thought, “Wow, they really want to make this program inclusive."

— Lori

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